The past year has been incredibly hard for me and my family. My partner has been battling the worst flare up of his chronic illness since he was diagnosed in 2003. It has put him on disability and he has missed over a year of work. While he has been suffering with fatigue, pain and getting no answers, I have been there advocating for him. I didn't realize the stress it had put on me until my own body expressed it with pain in my back.
This zine is a photographic essay on dealing with chronic illness from the caregivers perspective. I realized my feelings were more complex than I had allowed myself to think. Caregiving and advocating is incredibly hard and wearing. I only just began my journey into self-care. The reason my partner and I want to release this zine is to start a conversation and bring awareness to people who don't deal with illness on a daily basis. We also wanted to let other caregivers know they are not alone, as I thought I was. The medical institution has not done a good job of giving us hope or offering support. We feel like pawns in a game.
You can purchase the zine in my Etsy store.
I am going to post some of my experiments and thoughts. It can be anything from photography to art to mycology